Showing posts with label Melanoma. Show all posts
Showing posts with label Melanoma. Show all posts

Wednesday, April 9, 2014

Metastatic Memories is Out! Read About my Young Adult Cancer Memoir Here!

Pick it up here!

Wow.  It's been a long journey.  A very, very long journey.  But Metastatic Memories is finally published.  I hope you'll pick up a copy and share my story.  Because it isn't just my story; it's the story of 72,000 new young adults each year.  It's the story of untold millions worldwide.

Writing this book was easy.  The editing was the hard part.  I had to go over it again and again, making changes and rewriting passages until it reflected what I honestly believe to be a true account of my brush with untimely death.  And now it's done, and I hope that everyone will take something from the book.  I hope it will help.

Recently, while my family was passing the review copy between them, my nephew, the Creature, somehow managed to get his hands on it...

I may have had to coax him into it.

The Creature was not impressed with my efforts to bribe him with tickles.

Eventually, he got into it.

The Creature likes it!  "Hey!" he might have said, had he been able to form sounds other than Glar Glue Glar Gwwaaaa, at the time. "My uncle tells a pretty good story!  This might just be my favorite book."

Why thank you Creature.  Your uncle is proud to have such a dedicated reader in the family.  Creature, you even make a short cameo at the end of the book -- it's possible that you're reading about yourself here.  Or it could be that I've made that up, just like I've staged this whole post to serve as promotional material for the book.  What a low thing to do, using such an adorable creature as a prop!  Well, the truth is that I'm kind of attached to you, Creature, and I'm glad you're my nephew, and that one day you'll grow up and read my books, and tell me how much you don't agree with my version of events, just like your mom.  I can't wait for that day.

Until then, I'll just keep reading them to you, and pretending that your gurgles and smiles are rave reviews on content and sentence structure.  They're definitely more valuable to me than any other kind of review.

Buy your copy of Metastatic Memories here.

Saturday, March 22, 2014

Miley Cyrus Shows Off Her Sunburned Parts

Miley Cyrus came out with revealing pictures recently (what's new?).  Only these pictures showcased a nasty sunburn she'd gotten during her latest tour stop in Florida.  All of the media attention is on her skin... but in the erotic sense, and not the healthcare sense.  All of the advice is focusing on aloe to cut some of the pain she'll be subjected to at present.  While no one is mentioning the likelihood of much great suffering in the future.

I see this as a golden opportunity for her to make a positive impact by discussing the rising rates of melanoma in people in their 20's.  It's now the leading cancer in our age group, and kills one person every hour.  But, ya know, I guess we can just keep looking at her lady parts and making light of sunburns.

The reason for posting these latest pics is clearly to bring further attention to her loose cannon marketing blitz.  We all like to look at the crazy hot girl, and watch what she does next.  It's not surprising that you can find practically sixty-five million articles on these pictures.  But what you won't find are stats on her now elevated risk of melanoma, or stats on her risks of basal and squamous cell carcinomas.  If she comes down with cancer later in her life, though, it may bring us closer to my tongue-in-cheek goal of making cancer the next celebrity trend.

And here's an article from Huffpost about Miley's latest escapade.

Friday, March 7, 2014

This Is What The Cover Of Over A Year Of Pain Looks Like

The cover for Metastatic Memories is done!  My very good friend, John Langan, designed it based on a drawing I did in Middle School.  John and I go way back -- all the way, like, a few years ago to college.  Okay, probably close to seven years.  Which can qualify as "way back" if you only have a span of 28 years to pull from.

I'm ecstatic about the way the cover turned out.  It holds a great deal of symbolism and emotion.  Transfixing, is a good word to describe the finished product.  It's the perfect image to reflect the feel of the words inside.  John and his fiance' own a design firm catering to a variety of needs.  Check out their website, or like their Facebook page.

Without further ado, here's the cover of Metastatic Memories:


And here's the drawing it's based on:


I'm happy to report that editing is going well.  You can expect the release of Metastatic Memories at the end of March.  Read more about the book here.

Thursday, October 3, 2013

Cancer Research Institute 60th Annual Awards Gala

This past Monday, September 30th, I attended the Cancer Research Institute's 60th Annual Awards Gala.  The organization was nice enough to invite me and my girlfriend as guests at the event, where the leading researchers in the field of immunotherapy were assembled to discuss and receive due honors for their work.  Nightline anchor and ABC News correspondent Bill Weir emceed the event, and award recipients included Dr. Bahija Jallal, executive vice president of AstraZeneca, Dr. Jill O’Donnell, CEO of the Cancer Research Institute, and Sean Parker of Napster fame.  I myself was showcased at one point as a survivor, along with a few others, like Emily Whitehead, Mary Elizabeth Williams, and Sharon Belvin.

Look at that handsome fellow up on the screen.
The event was held at Cipriani 42nd Street, a massive architecturally stimulating venue.  Formerly the Bowery Savings Bank, the impressive space lies just across the street from the Grand Hyatt hotel and Grand Central Station, and down the block from both the Chrysler and Lincoln buildings.  A huge stone archway greets visitors, ushering them into a large dining hall surrounded by modified Corinthian columns that terminates in a second archway housing an enormous rear window silhouetted by velvet curtains.  Remnants of the Bowery savings Bank remain, with the dining room separated from the foyer by a framework of teller windows, and the entrance lined with deposit counters complete with pens on chains (that this writer found unpleasantly lacking in ink during an exchange of contact information).

I felt a little like I was in the Colosseum, waiting for a lion to pop up out of the floor and try to eat me during dinner.
Dinner was served in three courses, the first being a scallop salad (that I wished I could take home and love forever, and doubly enjoyed because my girlfriend doesn't like scallops), followed by filet minion or sea bass, and a rich chocolatey masterpiece that gave me four types of diabetes (how many are there?).  Though I'm trying hard to keep my vegetarian ways, I even had a bite of the filet.  Don't tell anyone, or I'll lose my street cred.  My table was filled with fellow melanoma survivors, and we had much to discuss about the role of immunotherapy in our lives.

The musical guest, folk-rock duo Johnnyswim, came out with an appropriate mix of melodic tunes that relaxed and uplifted the crowd at the same time.  Once described as “21st century troubadours,” the duo serenaded a captive audience through the entrĂ©e course with a short set.  Though the acoustics at Cipriani were not optimized for the band, and at several points our table discussed the possibility that the venue chose to forego a sound check, the band spoke well enough with their sound to make up for the lack of clarity.  I didn't hear a word either of them said between songs, but from the heavily reverbed noises they made that might have been words, it seemed like they were very much in tune with the event and happy for the opportunity to play the gala.  Co-founder Amanda Sudano had a more personal reason to be there, as she happens to be the daughter of the late Donna Summer, who succumbed to lung cancer in 2012.

The event was a huge success, in my opinion, for many reasons, namely, 1), it encouraged ongoing research into the most promising field in oncology today: 2), it brought together the leading minds in the field for debate and discussion into the latest findings: 3), it brought together those of us who've directly benefited from immunotherapy, and provided an environment in which we felt comfortable talking to other survivors and researchers alike: and 4), because I personally haven't been to many events like it, and it was a fantastic introduction into a larger part of the cancer community.

I tried to make a deposit during the event, though all I had on me was an acute case of alcohol poisoning from the open bar.
CRI's 60th Annual Awards Gala represents the future of oncology.  The most promising treatments are now coming from the field, and the organization continues to be at the forefront of a bright and hopeful future.  We're getting real results due to the efforts of CRI and its donors and sponsored researchers.  There are so many good things to say about the event, that it's hard to find anything negative.  The strangest feeling for me occurred when I realized that I was in an environment where it was okay to be my complete self.  Usually I'm holding back the survivor aspect of my character when in public, because, as a general rule, terminal illness makes people uncomfortable.  I was allowed to let go at the gala, and enjoy myself in a way that I haven't in a long while, around people who genuinely understood and were trying to help, because everyone in attendance was all in this crazy world together, all working toward a common goal, whether as a survivor, researcher, donor, or in another supporting role.  It enveloped me in a sense of community, and I very much hope to continue my involvement with the Cancer Research Institute's efforts in the future.  If you'd like to donate to their efforts, please consider doing so here: Ways to give to CRI.

Thursday, July 4, 2013

My Independence Day


Happy Fourth of July!  Happy Independence Day!  Happy Will Smith movie marathon day!

As with most July 4th holidays, images of barbecues, fireworks, and fireflies are running through my mind.  I remember one year, lighting snakes outside my childhood home for hours, and being told not to run with sparklers.  I ran with them anyway, because the patterns they burned into your retinas after being waved haphazardly through the air were worth the risk of second-degree burns.  Maybe you disagree, but as a ten-year-old, I liked to live on the edge.  When no one was looking, I sometimes ran with scissors, too.

Another year, visiting family out of state, my uncle decided to entertain us with his own fireworks display, using what I can only estimate to have been military-grade explosives, and ended up blowing a decently sized crater in the end of his driveway.



The last few years, I'd been going to see the fireworks display in State College, Pa, which is extraordinarily beautiful, and timed to a score of tunes that set your heart pounding (if you could tell the difference between your heartbeats and the reverberations from the fireworks exploding through your body, that is).  This year will be my first Fourth of July where independence has a particularly strong meaning in my life, and I intend to spend it with someone who embodies my hope for the future, in an adventure to upstate New York.  In a break of tradition, I'll forge a new association with Independence Day in my mind, and create a new standard of living for myself without the threat of terminal illness hovering over my head.

Because, you see, I have this keychain.  On the front of the keychain, my initials are engraved in large capital letters.  And on the reverse side is a date with a ribbon.  The date is 12-1-12.  My parents bought me this keychain and handed it to me the day after I was finished with treatment for stage 3 melanoma.  That day was December 1st, 2012.  Now, for some reason, the coming of Independence Day this year has triggered that memory in my mind.  It's made me recall how I felt when I was finally done with immunotherapy -- the relief, the uncertainty, the conquest, the hope, and all the whirlwind emotional static that clung to my neural pathways and wouldn't let go.

Today, Independence Day means something more for me.  It's an independence from cancer.  It's a day I can celebrate and remember the time I was handed a keychain, and told that I had earned my independence, if not only for a short time.  Because I was lucky enough to have gotten through my ordeal, that doesn't mean that it'll never threaten my life again.  It means that I now have the opportunity to appreciate my independence from tragedy with every new breath, and every sunrise.

Feeling independent from political tyranny suffered two hundred years ago is one thing, and celebrating the birth of a nation is a worthy cause that should never be taken for granted.  But there are other things that are important to feel independent from: things in life that are just as tyrannical as an oppressive colonial-era government, if not more.  I've told you what I feel independence from, and that gives me hope for the future.  Not to live a life for a certain amount of years, but to live with a certain amount of fulfillment.  To be able to fully enjoy my time independent from the terrible disease that haunted me in the past.  And I know that it may come back some day, but for now, I'm going to enjoy my independence.  I hope that even if it were to return, I'll still maintain some small wisp of this same attitude, whenever I flip over the keychain that my parents handed to me, and gaze at the date when I truly gained my independence, and for the first time really understood what it meant to do so.



What's your Independence Day, if you have one?  And, if not, what is it you wish you were independent from, and how can you make this happen?

Thursday, June 13, 2013

I Can't Get Enough of this Water Stuff

On a night much like this, when I've once again succumbed to the numbing and emotionally murderous wrath of alcohol poisoning, I take a deep, raspy breath and think to myself...

I can't get enough of this water stuff.

Water -- it was my constant companion for over a year.  In various forms, including sports drinks and uber-hydrating liquid goodness.  Water.  Water.  Water, water, water.

I'd like to talk about this nourishing liquid as a biological necessity, and also as a symbol of the ordeal in which I found myself.  And I'd like to do so in the form of a personal letter, addressed specifically to the clear, satiating beverage.

Ahem.  Here I go.

Dear Water,

You have been my constant companion for over a year.  And, if you want to get technical, I guess forever, too.  Because I hear the majority of me is made of you.  Moreover, I think that if someone were to squeeze me very hard, and diligently, a large amount of you would squirt out of me in various directions until I was the shape and consistency of a deflated inflatable tubeman.  Crazy.

Anyway, thank you.  Thank you for being the life-saving goodness you were evolutionarily designed to be to my corporeal body.  I think that's actually repetitive, but you get the picture.  Simply put, you are awesome.  I drank at least sixty-four ounces of you per day for an entire year.  It's odd to think about, because the average human person creature is supposed to hydrate with upwards of sixty-four ounces per day, but I don't think I have ever actually met that goal at any other point in my life.  And that's because it's ridiculously hard to do.  I had to force-feed (force-drink?) myself large amounts of you at a time until I thought I was going to explode, and my parents would have to mop up the bits of me that stuck to the walls and clung to those hard-to-reach corners of the house.  I remember the intense subconscious paranoia of those days, and that at one point how I thought I'd actually killed myself by means of water intoxication.  Did you know that if you drink too much of you, a person can actually die?  I didn't, but Google made sure that I knew about it.  Thanks Google, for feeding into my crazy when I needed it the least.

My year of Interferon treatments and drinking of you into my very soul was extremely rough.  I can't hide that, or not admit to it anymore.  I hated a lot of it.  I hated you, Water.  It amazes me how quickly my perception of you turned around, to be honest.  How quickly I was able to say, "Well, I had enough of you times ten, but I still kind of need you to live... Well okay, you aren't so bad... Oh lordy, you taste fine... Give me some of your goodness... That's it, get in my veins."

After the Interferon treatments ended, I was sent to the hospital with intense pain, only to find out I had a kidney stone.  Do you remember that?  It was probably caused by the interferon, due in part to dehydration (figure that out, you liquid nightmare).  And then, just when I thought you were out of my life forever (or at least until I was thirsty again), there you were -- and in large, ungodly portions once more.  I stocked up on you like I was anticipating the end times.  All available counter space was filled with bottles of you.  Bottles and bottles and bottles and bottles.  I could have kept several families alive for centuries with the amount of you I had to drink.  "This will flush out your kidney stone," they said.  "Just drink a lot of water," they said. "Hey," they said, "Are you drinking a lot of water?"  I laughed.  "Fella," I told them, all morphined up and feeling pleasantly disassociated with my circumstances, "If you knew how much water I'd been drinking, you would dig canals in me and found a city called New Venice."  Needless to say, Water, my dear, you did not work very well in this particular instance.  Or the original instance, now that I think about it.  Otherwise, this second instance would not have been compounded upon the first.  Hmm... Yeah... Water... What it is a good for?

And yet, after all of our complicated history, here you are in my hand (and mouth, and [insert part of the throat that swallows because Wikipedia is unclear about this], and stomach, and bladder) again.  I can't quit you, it's just too hard.  In my more vulnerable moments, I must admit that... I need you.  There, I said it.  Shit.  Can we move on now?  Can we have a normal relationship at this point?  In truth, I need to know that you'll be there for me when I need you, but also that you won't smother me by means of water intoxication.  Maybe what I'm saying is... I love you... but I'm not "in love" with you.  Not anymore.  You were there for me when I needed it, but now I need someone else.  It's true -- and I'm sorry. What can I say?  I'm a complex man, with a lot of layers.  You really only penetrated down into one, or two, or whatever, I'm not a scientist.  There's a girl now, you know, and that's going well.  So I think maybe we should call it quits.  Let's just have what we have, if that makes sense, and go our separate ways.  It seems like your separate way involves the majority of surface area on the earth, so I doubt I'll be able to successfully avoid you for long.  But, ya know, I'm glad we've been able to calm things down a bit, and I'd like to continue that trend.

Thanks Water.

Yours always (and by that I mean only when I absolutely need you),

Kevin

Thursday, June 6, 2013

Cancer Kid: A Story of Tragedy, Upheaval, and Resilience

The new book is becoming more of a reality every day.  Yesterday I had my standing appointment with my oncologist, who is featured in the book, to find out that he loved the advance copy I'd sent him.  He was very excited that I'd taken the initiative to write this, and his enthusiasm about the awareness and attention I'd be garnering for the melanoma community was infectious.  I felt vindicated, and relieved.  All the work I've done, I thought, it means something.

Today I got through another round of edits.  I have to admit, editing this book is the hardest thing in the world.  It dredges up memories and images that I try to keep in check most days, but when confronted by them directly I can't hold back the emotional floodgates.  It usually takes about five minutes for me to start tearing up.

I find myself saying repeatedly at times, "Jesus Christ, don't do this to yourself!!"  But I have to -- I am obligated.  And it is my choice.  I wrote this for important reasons, and revisiting the pain now and again is something I can deal with, and also something I owe myself.  It's vital that I read my own words sometimes, and remember how I felt during the time I faced an uncertain future.  It will continue to be a guide moving forward in my life.  And I hope it can be a guide to others as well.

I'm in the process of wrangling the last few permissions for quotes and other material used in the book, as well as doing my best to find a traditional contract for the book.  I'd like to see it get the widest distribution possible, in order to do the most good.  It will also help to secure the funding for future projects I'd like to complete, including a few followup books and a foundation.

I want to thank everyone for their support.  It's been quite a ride.  But you all have been very helpful, and have been behind me all the way.  It's a wonderful feeling to know that what I'm doing means something to others, and that if I really want to, I can help to make the world a little better.

We'll see how it goes.  I'll keep you posted.

Tuesday, May 21, 2013

The Return


Every setback is minor
Unless you're dead
Check out that depth
My words cut deep, like a deep-cutting thing
This is my attempt at writing free-form poetry
About the events of the last few days
I think it's a bit unreasonable to assume this will go well
That would be crazy
So I've given up already

Here I am, back in the city, feeling at this point like I've never left.  Although, there are new undertones, some of experience and perspective, others of urgency and love.  I now see the city through the filter I'd always wanted to have.  That can only get better over time.  That isn't true, but I hope that it does get better.

I've finally injected myself into the survivor community, and while that's wonderful and I very much needed it, it serves as a flashback to memories that I'd much rather forget.  But I know I can't forget.  I have met wonderful people recently, people who make me feel welcome and understood.  But that "understanding" comes at the cost of gazing into the dark cloud surrounding all of us.

I'm terrified that I've gotten to a point in my life where I'm happier to be "normal" again than I am to pursue the goals I set for myself after my diagnosis.  The desperation I once felt had been fading for a long while, until just now, when I hung out with these fellow survivors who made me remember what it was I promised I'd never forget.  Even writing these posts reflects that -- I don't feel the same vulnerable honesty coming through in my words, and instead there's a natural tendency geared toward avoidance that's doing the rounds in my mind, sweeping aside any painful thought.  But those painful thoughts are necessary to process, for the life that I'm committed to lead.  And right now I'm feeling very uncertain about how my mindset will take shape in the future, and afraid that I'll lose something that's been so important to me, even if that something is very negative.  Should you let go of negativity?  Even if it's a driving force in your life?  I think it's better to incorporate its lessons, and move forward as a more complete person.  And that is my hope for myself.

I wonder if any of this is actually readable.  I'll sum up.  Letting happiness define the future, as opposed to what I'd been doing, is troubling right now.  Because I had forged ahead using certain tools for so long, that were made completely out of the emotions revolving around so much negativity.  And now I have to mingle the two, and hope I can craft an emotional cocktail that plays well with my soul.

If you've had a similar experience, I'd like to hear from you.

Wednesday, March 27, 2013

Upcoming Story Collection

Hello all,

It's nice to see you again.  I wanted to provide a general update on my goings-on and keep everyone in the loop.  Very soon, I'll be publishing a science fiction short story collection that will be available on Amazon in print and ebook form, called Astral Imperium And Other Stories.  Right now, it's in the beta reader phase, and after a bit of polishing it should be ready to go.  My good friend Bobby Gore is doing the cover art, and I hear it looks fantastic.  Stories include homicidal robots, interstellar mysteries, unhinged space monks, conspiracy, temptation, revenge, and friends with awful intentions.  I personally recommend it, though others will do that too so you won't have to take my word for it, I promise.

The cancer memoir is in the pipeline as well, though I'll be saving that for a rainy day.  For now, I'm going to focus on science fiction.  Oh, and feeding myself (I've been told that's important).  Or, in other words, creating a viable living from wordsmithing.  But not to worry! -- I've written three books already, and I'm in peak form, weaving words together into coherent and entertaining thoughts daily and at a respectable rate.  In fact, I've been working very hard.  And I don't say that to sound impressive or brag.  I say it because I'm genuinely proud of myself, and happy that I've finally taken to something that doesn't make me want to leap from a skyscraper every day I leave the office.

Cancer has been very freeing in that regard.  I've been offered a fresh start from the universe.  And I haven't wasted any time grabbing it up (at least I don't think I have, you might have to ask my family and friends for the truth of it).  I've always been writing, only now the stakes are much higher.  There's this whole insurance thing I need to pay for in case of more cancer, or in case I decide to jump ten minivans on my tricked out scooter (I don't have a tricked out scooter, sadly).  I hope that my attitude toward pursuing my goals inspires you to do the same.  Because everyone should feel that way about their vocation.  It shouldn't ever be something that "pays the bills."  It should be do or die -- you do this because you can't imagine living without it.  There must be a sense of urgency.  Nothing else would cut it in the same way that writing does for me.  And it's not a chore to develop a work ethic around something you love.  It's easy for me to feel this way, because I was dying once.  And you tend to discover exactly what's important to you when you find out you might be dying.  Every day during my first month of immunotherapy in the hospital, I sat down and wrote around 1,500 words, even though I could barely stop shaking from the chills and a number of other horrible things.  And after a health crisis you respond to life very differently.  I deal with my most egregious sin, for instance, in a much better way than ever before.  I plan to talk about that in a later post (Sorry for the tease!).  And I've already discussed conquering fear and realizing your potential in a previous post.  If you haven't read that you can find it here: http://zenofmetastasis.blogspot.com/2013/02/a-domain-of-evil-it-is-in-you-must-go.html

Thanks for reading!  I'm very glad to have a fantastic support network to turn to when I need it.  This blog, and the readers who encourage me to continue to write it, are a large part of that.  I only hope I can offer in return what I've gotten from all of you.

Tuesday, March 12, 2013

A True Underdog Story - My Cousin Bryan

Writing about cancer all the time is really awful.  It takes a huge toll on the writer.  Especially if that writer is no longer actively fighting cancer himself.  You have to dive back into the same mindset you had while you were patrolling the trenches of cancer, and constantly relive a lot of traumatic shit, on cue.  It sucks, every time.  But I'm not here to complain, I'm here to educate.  Which is why today, I bring you a true underdog story.

There are some who label cancer survivors "heroes," and if you read my last post, you already know how I feel about that.  I think the real heroes have qualities that are present whether cancer is or not.  And those people fight against inequality and injustice, regardless of their own lot in life.  And that brings me to today's topic:

My cousin Bryan, the underdog.

Bryan is, as we speak, embroiled in a vicious battle with his Home Owner's Association.  For the right to keep his recycle bin on the front porch.  You heard it here.  It's a struggle to survive in his own neighborhood.  This story has it all -- drama, action, romance (I don't know if any of those claims are true).  It's a coming of age tale of one recycle bin who refused to be relocated, and the owners who loved him.

You can read the full story, complete with the back and forth with Bryan's HOA, here:  http://thebryguy115.wordpress.com/

Bryan is spectacularly witty and tells wildly entertaining stories.  I know this, because I had to see him on Thanksgiving every year of my whole life.  And this one's no different.  He takes a dull, innocuous topic and turns it into a tongue-in-cheek adventure.

Thursday, March 7, 2013

The Truth About Heroes And Cancer

Cancer is not a fight.  It's an illness.  Some people don't get better.  Period.

Cancer doesn't operate on our terms, and that makes people very uncomfortable.  And so there are those who have the propensity to create a mythology to cover up the realities of the disease, in order to apply an idealized version of it to mesh with our moral code or cultural viewpoints.  It's a selfish thing to do, and it doesn't fool anyone.  For example, there are no heroes when it comes to cancer.  There are people who live, and there are people who die.  Sometimes there are reasons, sometimes there aren't.  Sometimes it makes sense.  Mostly it doesn't.  As Xeni Jardin has said, "Lots of people suffer through treatment in pursuit of more life.  Some cancers don't respond.  Some of us die.  We're not heroes or failures."  There are too many people who are lauded for surviving a disease they have no control over, and so many who are forgotten because they didn't.

Recently I found out that my first survivor role model has opted to end his treatment.  I have never met him.  But he was the first young adult cancer survivor I came across after I was diagnosed, and I followed his progress intently, possibly even to distract myself from own treatment.  He accomplished a great deal in his life, and I think that he's a hero.  He isn't a hero because he survived cancer for so long, and he isn't a hero because he's dying now.  It isn't because of his attitude or perspective, or the overwhelming courage with which he chooses to meet his fate.  All of those things are commonly said about cancer survivors.  It's nonsense.  No one is courageous by choice.  We are courageous because we don't want to die.  None of us can say that we know what it means to give up, either, which is another misguided argument.  "Well Jim will fight hard because he knows what it means if he gives up."  Jim has no idea, and neither do you.  Truth is, we just don't want to find out.

This man is a hero because, in the absence of cancer, he would have lived his life the same way -- in the service of others.  Because he would have found a way to make the world a better place regardless of whether or not he was ever diagnosed with a terminal illness.  Heroes are people who embody the idea that the needs and sufferings of others are more worthy to address than our own.  People who know that they can cope with their own lot in life as long as they know they've done their part in making things a little easier for those who have it worse.  Some people live solely for the purpose of helping others.  This man is one of them.  He has fought, and continues to fight a system he knows firsthand to be broken.  He carries the torch for change, knowing full well that he himself is beyond help, and anything he accomplishes will not serve to benefit him.

If you think someone is a hero for surviving cancer, or courageous, or inspiring, then you're part of the problem.  You're doing it wrong.  Anyone can survive cancer.  And anyone can die from it.  You want to sell your book, or promote your movie with a heavy sugar coating of mythology wrapped around the serious, ugly core of a terrible disease; that's fine.  Leave me out of it.

Respect those who give back.  Respect them more if they do it without any promise of a return.  I don't care what disease they have or don't have.

Saturday, February 23, 2013

Exercise... exorcise... exorcist.

Let's get on to something practical, shall we?  We'll call it, physical activity.  Because that's what it's called.  These days, working out feels a little like exorcising demons.  It's just about as vigorous and spiritually exhausting.  And if you've never exorcised any demons, I suggest you give it a go and find out what I mean.

First, a little background.  I've been exercising since the age of 7.  In fact, I don't remember when I started working out, but I use 7 as the base age because that's when I joined my first martial arts school.  I starting training very early, for whatever reason anyone wants to do anything before they develop the capacity for abstract thought.  "This will allow me to improve myself physically and teach me valuable life lessons while maintaining an emotional and psychology balance," I might have said, had I been old enough to entertain such thoughts.  But instead, I probably just said, "Hey, it would be pretty sweet to learn how to kick a dude in the junk until he throws up," and bothered my parents until they took me around to look at different schools in the area.

I joined my school for a very simple reason.  They wouldn't let me sit and watch like the others.  They forced me to jump in and participate.  And so, at the age of 7, I began training in Muay Thai, Kali, Boxing, Kenpo Karate, and Japanese Juijitsu, with a smattering of nanchaku and bo staff thrown in for good measure.  I made my assistant instructorship in Muay Thai when I was 16.  My instructors were unconventional, and I came to find out that it was much more difficult than the generally accepted assistant instructor test.  It was, in fact, the most grueling physical test I've ever endured.  And although I became sidetracked and never made my black belt in Kenpo and Japanese Juijitsu, I was only two ranks away.  I went on to study Brazilian Juijitsu, and round out my MMA game later on, a few other weapons styles.  In college, I joined a mixed martial arts fight team.  In NYC, I trained with a world champion.  Aside from martial arts, I've always been very active.  I was on both the baseball and basketball teams all through grade school.  I ran, sparred, lifted weights, and generally kicked ass.  In college, I met the best shape of my life, working out with the fight team and going to the gym daily with one of my best friends in the world -- a shape I still have yet to get back to, although there's still time.  After all, there are all those commercials about 40 and 50 year old doctors who are in better shape than their 18-year-old sons.  They're all full of shit and trying to sell you something, but we can pretend.

After my corporate job was over, I started training seriously again.  My goal was to get back into fighting shape.  I even had a fight scheduled for the fall of 2011, before I was diagnosed with cancer and had to move home.  I was feeling good at that point, and perhaps more importantly, I was looking good.  I won't deny that I took a great deal of pleasure from the fact that I had a firm and toned musculature, and that the opposite sex generally appreciated it very much.  That made me happy.  More on this later perhaps... ;)

For now, I want to discuss physical fitness post-cancer.  It, in a word, sucks.  Immensely.  And I'm sure anyone who's had a period of forced sedentary behavior can understand and appreciate how daunting it is to get back into shape.  As I look over my shoulder now, back to a time when I was in pique physical condition, I get upset when I turn my head around and look at the path ahead.  Getting back to the point where I once was may never happen, and it might not even be very practical to do so.  But I'd like to think that with effort and discipline, I'll be there soon-ish.  And I plan to pursue formal training again, as soon as I can.

In the meantime, I need to get myself back to the point where I can compete with others again.  And that's all up to me.  Through treatment, I tried to keep up some degree of physical activity, but it was irregular and not very intensive.  I tried to follow a workout program while undergoing immunotherapy, and after a week of it I found myself lacking the ability to stand up.  So that experiment was scrapped.  And even though all that is over now, it's tough to know my limits, and also frustrating to admit that I have any in the first place.  Because I never had before.

Since treatment ended, I've been using the elliptical regularly, and increasing the duration and intensity as I go.  Recently though, I've decided to get back to basics.  This philosophy, if you don't already know and apply it to your own life, is the most important you could ever entertain.  Period.  There are certain things in life a person can't live without. And if denied these things, that person will undeniably cease to function at an optimum level.  It's sort of like suppressing a part of your very soul.  And you can't expect to hobble along with much functionality if you're lacking pieces of yourself.  Mine are writing, martial arts, and music performance.  If I go without any of these for extended periods of time, I get grumpy in a very fundamental and existential way.  So, I've started shadow sparring again.  I started slow, doing three rounds of Thai/boxing, the first round with weighted hand wraps, and concentrating mostly on regaining proper form and testing muscle memory, which is, fortunately, intact.  Then today I picked up the Kali sticks and the nunchaks and did drills until I was sweaty and exhausted and my hands were covered in blisters.  It was a hard blow to realize my hands aren't callused anymore, and it makes me worry about what other kinds of conditioning I've fallen out of.

All this falls far short of hours of training and round after round of drills and sparring with cardio intervals capped off with a death-defying ab routine, but it's a start.  Even the most impatient of us (myself included) have to start somewhere, even if we've already been there.  We have to find the strength to understand that physical fitness is not a goal to accomplish, but a lifestyle.  Physical fitness can never be "accomplished."  It's a daily battle of willpower, a daily decision.  You act as your own drill sergeant, conditioning yourself to revel in bodily punishment.  For me, it's been almost a spiritual journey, rivaling that of the Indian ascetics or the Shugendo practitioners of Japan.  The satisfaction of physical punishment in exchange for self-improvement was once the greatest satisfaction.  Now though, being out of practice for so long, I complain about my muscle aches and pains like everyone else.  I feel average, in an area where I've always felt superhuman.  And it will take great effort to pick myself up and gradually climb back up the ladder, rather than give in to the urge to give up and forget about it, and remember fondly the days when I could move heaven and earth with the strength of my physicality.

If you have a similar situation, or if you're getting in shape for the first time, or simply looking for ways to improve yourself, let's do it together.  I could really use the motivation.  I want to get back into fighting shape, but whatever your goals are, let's help each other.

Sunday, February 17, 2013

"A domain of evil it is. In you must go."

Fear and dissatisfaction are the enemy.  If you're afraid, face it.  If you're dissatisfied, change it.

It's really that simple.  I did it just now, and I do it every day.  More often these days than in the past, but that's alright.  With more exposure to the world at large we generally expect to find more things to be afraid of, and to be dissatisfied with.  It's a numbers game.  I would never have thought to be afraid of dying before my thirtieth birthday before my cancer diagnosis, for instance.  I also never worried about being hit by a subway train before I moved to NYC.  I was never concerned about paying for sub-par deli meat and bagels before finding out there's life after Boar's Head.  And I most definitely never imagined how nervous I'd be that someone would find me out while masquerading as a marketing account manager for a beer company at a VIP signing party.  But hey, these things happen.  Also, a quick thank you to my bro Velasquez for smuggling me into that party.

This may be an obvious conclusion, but it's easy to remain unafraid of that which you have no knowledge.  It's easy to remain unconcerned with questions you've never asked and doubts you've never entertained.  Sometime, though, you will ask questions and have doubts.  And it's okay to have doubts and fears, because everyone does, and it's an unavoidable aspect of the human condition.

What isn't simple is preparing for these preexisting or sometimes unforeseen fears.  The difficult part is rising to the level of self-control it takes to be able to adjust your attitude and emotional state with relative ease.  It requires a great deal of personal development and self-knowledge.  Here is my step-by-step guide for $19.95!  No, I'm kidding.  Everyone acquires personal development from different sources, and self-knowledge is as subjective as there are "selves."  And there's no handbook to any of this.  People will tell you there is, but what they're really doing is trying to sell you their own handbook.  As a general rule, I'd advise not to trust anyone who won't allow you to find your own way.  As Basho reminds us, "Do not seek to follow in the footsteps of the men of old; seek what they sought."  No one can hand you inner peace, everyone must find their own.

My way is easy.  I consciously analyze my fears.  It's bizarrely effective to understand the roots and facets of your fears or dissatisfaction.  Maybe this is also fairly obvious.  But that doesn't mean it's accomplished very often.  For the most part, these things take the form of subconscious emotions.  They hide deep in the shadows of your mind, where they can't be fought.  They put up barriers that redirect and confuse your ability to confront them.  The minute you are able bring them to light, however, you can figure out how to deal with them.

I'll tell you a story.  After my year of immunotherapy treatment ended, I was very excited about things getting back to normal.  And I'd tell myself this every minute of every day; "Man, I'm so excited that this is over, and that now I can go to grad school and write another book and get a job and date."  I told myself this constantly, repeated it in my head like a mantra.  And if I had the courage at that point to take an honest look at what I was doing, I would have realized right away that I was in severe denial.  Justification mode was fully engaged, and I was making excuses for my behavior, which did not at all reflect the mantra I wanted so much to believe.  I wasn't ready for "normalcy," I was neurotic and terrified of everything.  The moment I realized this however, I was free of it.

One of my favorite quotes of all time, regarding the subject of confronting fear, comes from Michael Crichton's memoirs, Travels.  It describes a trip to the African Savannah where he comes to find out there's a giant elephant outside of his tent in the middle of the night.  It deals very nicely with the subject of true conscious awareness of fear as a way to quell it.  I'll post it here:

"We can all work ourselves into a hysterical panic over possibilities that we won't look at.  What if I have cancer?  What if my job is at risk?  What if my kids are on drugs?  What if I'm getting bald?  What if an elephant is outside my tent?  What if I'm faced with some terrible thing I don't know how to deal with?  And that hysteria always goes away the instant we are willing to hear the answer.  Even if the answer is what we feared all along.  Yes, you have cancer.  Yes, your kids are on drugs.  Yes, there is an elephant outside your tent.  Now the question becomes, what are you going to do about it?  Subsequent emotions may not be pleasant, but the hysteria stops... the minute we look, we cease being afraid."

I try very hard to challenge myself into examining my true fears, as well as my true desires.  The minute we admit to having them, we immediately find suitable avenues to pursue or deal with them.  Most people have fears with easily-identifiable sources.  Some people hate their jobs, but are afraid to quit.  Others are no longer in love but are afraid of breaking up.  And we can sit around complaining about our dead-end relationships, soul-sucking jobs, or whatever the case may be, or we can stop being afraid that the world will end if we deal with these things and actually get what we've wanted all along.  Maybe you want a better job or a better significant other.  You have to respect yourself enough to know that your time on the Earth is valuable and irreplaceable, and it simply doesn't pay to spend it not doing what you want.

These days, I have very clear goals.  It's been a long journey for me, but I've pinpointed my fears, and my desires.  I'm going after what I want.  I hope you will, too.

"The cave you fear to enter holds the treasure you seek."  - Joseph Campbell

Wednesday, February 13, 2013

I almost died once; Nice to meet you.

Let's talk about sex.  Well, in a minute.  Why don't we get to know each other first?  Let's talk about where we grew up, what clique we fell into in high school, and what sports we watch.  What kinds of things do you like?  I like turtles, and chocolate chip pancakes.  How about you?  Let's engage in the long-standing tradition of courtship, and marinate slowly in the developing bond of our sprouting romance.  It'll be fun.  Hmm... that kind of talk makes me hungry.  So maybe we can cook together too.  I like dinner dates -- the kind where you go out of your way to cook some exotic dish together.  Some assembly required.  Which is alright, because some assembly is required in budding relationships to begin with, right?  We'll do sunsets, carriage rides, stargazing, and Eskimo kisses.  As long as we have each other, and these butterflies, what could go wrong?

I bet you can almost see where this is going.  Almost.  You see, I didn't have a significant other going into my diagnosis.  Sometimes that was sad, but mostly I felt lucky.  I thought it was a fortunate turn of events that I didn't have a girlfriend, and therefore had one less person in my life to worry about me.  I was lucky not to have to drag someone extra down into the depths of my suffering.  I'm not the kind of person who would forge an extreme bond with someone in order to distract myself from a terrible situation.  I couldn't star in "A Walk to Remember."  If anything, I'd rather "Sweet November" the shit out of someone, but I doubt I'd ever be able to, in reality.  A) I don't think, realistically, that anyone is strong enough to do something that intense, and B) Keanu Reeves is not my type.  And so it's better off leaving well enough alone, and keeping my distance from any potential emotional bonds on the horizon.

And that was my attitude, for a year and a half.  In some ways, it still is.  Because it's very hard to allow yourself to connect with someone when you think you might die.  Or, at the very least, when you've been bumped up a few spots on the list.  Connecting with people I find interesting has never been my strong suit, anyway.  I've always had an easy time winning over people I don't care about.  I could do that all day.  I could just turn on the charm as easy as if I were flipping on a light switch, and people would fall for me.  It was a tough realization when I figured out that isn't how you generally begin a relationship that's wired for success -- by seducing people you couldn't care less about, in order to make yourself feel better.  It sucks, I know.  But there comes a time when you have to learn to be okay with yourself long enough to find someone who might also be okay with you.  The real you.  Not the one you put on, like a mask, to serve your own narcissism.

Most of the relationships I've had, and the people I've met, in the last few years are a mystery to me.  Aside from the friends I've had growing up, the ones I can trace all the way to the backyard days of my youth, I really don't know how I've made any friends at all.  But it seems to me that I know a lot of people, and a great deal of them like me.  I've been told I'm "likable," and that may be true.  I like to appreciate and dissect the issues and concerns of others before those of myself, and I unconsciously focus on other people in conversation or action.  I also try to be funny.  At one time I was very funny, but I'm no longer as outspoken or extroverted as I once was.

When you go through something like this, something life-threatening, all of your quirks and character traits become multiplied by a thousand.  You become almost a caricature of yourself.  You double down on your principles and your deepest wants and needs.  Since my deepest feelings are for those closest to me in life, I stopped talking to anyone who I viewed as extraneous.  And I developed greater bonds with my family and close friends.  The people I included were genuinely needed at the time, and still are today.  However, the problem lies in the nature of my rejuvenated loyalties.  It seems I've forgotten how to connect with people in general, and I don't have the easiest time convincing myself that it's even necessary to do so.

Sometimes, the greatest depths of solitude are found in the eyes of the person across the table, whom you have no interest in saying another word to.  Since my diagnosis, I've had different opportunities to meet and talk with various people.  And every time, I walked away disappointed.  Mostly with myself, because I legitimately can't find the energy to connect with someone on a superficial level.  It's devastatingly hard to make small talk -- poking and prodding at the psyche of the other person in order to gain insight into what makes them tick.  Figuring out body language, and nonverbal messages.  That's something I used to love doing: character analysis, behavioral analysis.  It was always easy for me, and always enabled me to say exactly the right things at exactly the right time.  It gave me great satisfaction to be able to do that, in many more ways than one.  Maybe I'll get back to that someday, I don't know at this point.  Or more likely, there's a balance to be struck somewhere.  I'm realizing that possibly, just possibly, it matters a great deal more that you represent yourself in the most genuine way possible, rather than worry exclusively about how to make the person across the table swoon for you.

Honest communication, with women or otherwise, isn't a new idea to me.  I'm an adult, and I've had adult relationships.  But the concept, like all of my psychological anchors, is now multiplied by an infinite magnitude.  The pressure to be honest and the bold-faced luck it takes to find someone who actually appreciates what you're offering is probably terrifying enough for anyone.  Add to that a year and a half of post-terminal-illness neuroses, and you have yourself a cornucopia of obstacles.  Although everyone has issues, and many relationships are defined by who decides they can put up with each other, there are certainly other factors.  Perhaps most importantly, one has to be a voluntary participant.  And that includes several things.  One of which is, like I said before, being okay enough to find someone who is okay with you too.  And that shit takes guts.  It also takes time, energy, and other intangible resources that involve a stable psychological bearing.  When someone pursues a relationship but doesn't have these things, that relationship will fail.  People like this generally hop from one relationship to the next, never pausing for a diagnostic check or to evaluate their own self-worth.  Or they date superficially, turning on the charm like a switch, always making sure to say the right things in order to distract from the fact that they aren't actually letting anyone in, much like a magician uses slight of hand to hide his true actions.  You wouldn't hide your true self from someone unless you either didn't think yourself valuable, or you didn't think that person valuable.

I hide myself in public all the time now.  Because my true self is wounded.  And I have no desire to spill those wounds out onto the ground.  I'll hold my severed guts in with my own two hands for now, thanks.  But someday I plan to figure this out.  It's easy to assume I've permanently altered my ability to connect with people, because that implies no work needs to be done to correct my current attitude.  And I think that's the wrong way to go.  Because other people have had problems, and other people have found a way to love and friendship.  And I'm still very young, and I have a lot left to do.  I have many more people to meet.  I might as well do it on my own, principled terms, which include appreciating them for who they are, for what their minds and souls reflect, and not for how they can make me feel, or what I can get out of it.  Other people are enriching enough on their own, without having to make a game out of your relationships.  That's a conditioned response I'll have to work on.  I have pursued relationships with women and with friends for many reasons: because I was in love, in lust, I was bored, because once it was the greatest game.  It remains to be seen how I will do so in the future.

But hopefully I've uncovered something valuable to anyone who reads this.  Hopefully I've given a reason to reevaluate any relationship, even ours, and polish off some piece of it we can keep in our hearts, untainted, until the end of time.

Friday, February 8, 2013

David Cancerfield

Hello there!  Kevin here.  I hope you're all doing well.  The plan for this post is to supply a little background.  I wanted to explain to you a bit about myself, do my due diligence and get the "David Copperfield kind of crap" out of the way.  A lot of you might already know who I am, but it never hurts to have a refresher.  Besides, a lot has happened in the past few years, and I hardly recognize myself these days, so I think it proper that I try to explain exactly how I got here.

I'll tell you in advance that I hate introductions, and I hate talking about my self.  Any time we had to go around the room and introduce ourselves, whether at school, work, or wherever, I always tried to make a joke out of it.  When it came to be my turn, I would dismiss the exercise by saying something humorous or outlandish.  I usually brought up a funny aspect of my life or an unusually entertaining interest.  It ended up making people laugh, or at the very least raised a few eyebrows, but it never was very informative.  Although, in my defense, you could easily make the argument that defining yourself as a vocation is much less informative than what I offered up.  A person could know a lot about me by the kind of answer I chose to give.  And I gave people direct insight into my character.  As if saying, "Hello, this is precisely who I am and what I can offer you.  If you aren't interested, I wish you well regardless."  

Or maybe that's an excuse, and I really just have issues talking about myself.  That's more likely than what I just said, isn't it?  Yes, it's true, I have trouble letting people in.  Well, unfortunately for me, in a story like mine, it helps to have some background.  In particular, we need a setting, a character history, and a plot synopsis.  That's a lot for one post, and a lot for me to divulge without breaking out into involuntary ticks, so I'll try to keep it brief.

I have lived an incredibly fortunate life.  My youth was glorious, high school was even better, and college opened my eyes to the nature of the world, and the contents of my soul.  But I will save all of that for a later post.  Because it's young adulthood that really concerns us, as it's the backdrop to this story.  And New York City, is the setting.  It's the place where I came into my own and tightened, for the first time, a lot of the nuts and bolts of my character that until then had careened around artlessly in my head.  I squared the free stones of my nature, and built a new and exciting life for myself.  One to be envious of.

Let it be known that I despise braggarts, and openly narcissistic personalities.  Bragging reveals more about one's fears and inadequacies than it does about one's achievements.  In this case though, it's necessary to talk about certain accomplishments in order to uncover the disparity between my former life and the one I find myself leading at present.  Showcasing my life pre-diagnosis will hopefully serve to paint a more comprehensive picture and candidly reveal the broader circumstances surrounding my fight.

By the age of 25, I had worked on campaigns, managed a city-wide project and 130 employees, written for a celebrity client, been invited to join a secret society, attended VIP parties, had a fight scheduled by the producer of UFC, been in a music video, played live shows at music venues, hung out with celebrities, and more.  I had been a lover, a fighter, a world traveler, a rock star, a poet.  There were pool parties, expensive liquor, bars where everyone knew my name.  And there were the greatest of adventures.  I explored my environment relentlessly, with the finest company.  I was on top of the world, in the greatest city in the world.  New York was more than an oyster, it was a playground for the soul.  And I quenched my soul deeply and often, underneath its lights and between the five hearts of its boroughs.  The blackened canopy of lustful nights became as much a home to me as the house of my youth.  There were one-night stands, power struggles, and drunken arguments with cops.  It was, in fact, the life I'd always dreamed of.

My New York friends will laugh at this.  Especially the natives.  They grew up there, and they know it all -- the culture, the accessibility, the diversity.  They laugh at the starstruck tourists, the transplants, and the bridge and tunnel club.  I admired the ones who could navigate the intricacies of a complex machine that I had only until then dreamed of.  And a handful of them seemed to be in possession of certain secrets, or answers to questions I'd obsessed over all my life.  I attached myself eagerly to these few, for good or for ill. What no one will tell you is that New York is abuse, from the minute you wake up to the minute you pass out, drunkenly, in the apartment you can barely afford.  Surviving there is its own career.  And those who choose to try are either out of their minds or, like anyone else, simply conditioned to their environment.  But all of us dream of something more, and wherever we claim citizenship, it isn't fair to say that it's the most courageous of us who act upon that dream.  It could the most curious, the most ambitious, the most cold-hearted, or the most dreadful of us.

Of course, life in New York, as with anywhere else, is sometimes very simple.  Sometimes the most important thing is finding a place to pee on the way home from the bars.  Sometimes the most important thing is finding out if the eyes across the room are for you.  I had explored those things and plenty more.

My last few months in the city were some of the best months of my life.  And I know this because I don't remember much of them.  The number in my savings account warmed my heart, and I had no responsibilities.  I had just finished managing a project at Yankee Stadium, and I was doing what I wanted -- I was writing.  My friends and I began to embark on a series of adventures that would put Odysseus's journey to shame.  I wasn't afraid of anything.  Nothing in the world could scare me after I'd conquered the most intimidating location on the planet.  And then, after a few months of living like a prince, with friends that have come to be family, it all fell apart.  At the age of 25, I was diagnosed with cancer.

I'm not writing these words so that you'll feel sorry for me.  Mine is just a story.  Other people have stories too.  In fact, we all do.  Some of these stories are very similar to mine, some of them very different.  Each of us lives through a torrent of abuse in the time we are granted.  And we are all of us tested -- and not in any divine sense -- for the right to be warriors against insurmountable odds, for the right to exist.  Everyone fights, and everyone's battle is extreme in its own right.  As members of the same family, we should strive to try and make the battle as painless as possible, with all of life's benefits and opportunities as accessible to others as they are to ourselves.  Because we're all in this together.  And if we do have any God-given rights, the most important of them is, without a doubt, that we have the right to be nice to each other.  

Monday, February 4, 2013

Metastatic Memories

I've put this off for a long, long time. In fact, I've put it off for a year and a half. I mostly discouraged myself from even considering the attempt, from the very beginning. I saw other people doing it, and I thought that although in some cases they were very successful in their undertakings, it simply didn't appeal to me. Something about it makes me squirm. It inspires me to fight to uncover any excuse in the book in order to justify my inaction.

What am I talking about? What is this terrible and ugly thing that I'm resisting with every fiber of my being? Because there are many things in life that I choose to resist. Things I refuse to take responsibility for out of fear or an inability to face the emotional and psychological consequences. As with us all, I too abandon certain nagging thoughts to the dark recesses of my mind. As with us all, I accumulate pain and guilt through a series of encounters with forces either beyond my control or not. And as with us all, I have many pervasive and lingering fears. In this case, however, I'm talking about the decision to write publicly about my experience with cancer.

Perhaps publicly isn't the right descriptor. Because, in fact, I've actually written a book about it that's currently being shopped around for publication. And there's hardly anything more public than that. I suppose what I mean, specifically, is the actual act of blogging. Blogging is a more accessible form of media. It's a series of intimate details about the blogger's own life. A projectile vomiting of unfiltered ideas that can be interpreted and analyzed with little effort. Constant postings that explain the character defects and neuroses of the author. Blogging constitutes a window into the blogger's very soul. It's a very public enterprise. I've always wanted my accessible thoughts, my public thoughts, to reflect a particular attitude or brand. I never wanted to be the cancer kid. Yet that's what I am. I wanted to be the carefree, mildly eccentric, live-life-on-his-own-terms, rock star personality that I so admire. I want to make people laugh. The last thing I want to do is make them uncomfortable. In fact, I don't even want to make myself uncomfortable (who does?), even though I've been in a constant state of discomfort, albeit unconsciously at times, since my diagnosis.

My decision to finally offer up a public record of my cancer fiasco is in fact an act of great personal courage. But I'm not asking for your admiration. Others may not find writing about their cancer to be very difficult. But they might struggle with something I find easy. That's the nature of being human. We all have our wars to wage.

And so my reluctance to blog about this has been covered by layers and layers of justification, buried deep with no hope of discovering why the resistance is present in the first place. Any time the topic is broached, I find myself saying, "Blogging? Well, shit, I wrote a book, for God's sake -- isn't that enough?" And I don't know the answer to that. Maybe it is enough. Or maybe, as a cancer survivor, I have a unique obligation to increase awareness and fight for those who can't fight for themselves. Possibly, and I plan to post more on this later.

But why the resistance to blogging? I did write a book. I wrote it while undergoing immunotherapy for stage 3 metastatic melanoma. A good bit of it, probably a third, was completed during my first month in the hospital, where I received the lion's share of treatment intravenously every weekday for four weeks. Days when I cried myself to sleep most nights, and struggled desperately to keep my sanity intact. But those images and feelings, those metastatic memories, are distant. My diagnosis, my surgeries, my treatment, all passed in a blur. And likewise, most of the actual writing did as well.

It's the paralyzing fear of revisiting these memories that keeps me from blogging. Now that I'm thinking clearly, and enough time has passed, I've gained the capacity for perspective. When something traumatic happens to you, it's very common to shut down emotionally in order to avoid the most terrifying aspects of your ordeal. And that's what I did. I functioned entirely on autopilot for a year and a half. Ostensibly, that isn't even a bad thing. In fact, I did very well. When you've severed all emotional connections to your circumstances, you can be anything you want. I was very courageous, and I'm told I was the glue that kept my family together after my diagnosis. I spouted contrived wisdom and used romantic ideals to comfort those closest to me, hardly realizing what I was doing. Some of the things I said or did are offensive to me now, due to the absurd oversimplifications I entertained or encouraged. Cancer is not romantic, and the smell of death circling above your head can never be effectively aerosol-ed. The mere suggestion that it can is offensive. And I was at one time the worst offender.

And so, after "waking up" from a year and a half of autopilot, a year and a half of embedded trauma, and a year and a half of drug-induced cognitive suppression, it's almost unbearable to look back over the events of the last year and a half without overwhelming terror. I've woken up to find myself alive, in working order, and surrounded by love and support. It's my responsibility to carve out a path from there. That in itself is terrifying -- what is life supposed to be like after cancer? How fulfilled can it really be? Do you stop taking shit from anyone, or anywhere? Do you adopt a no-shit policy? Is it okay to finally be selfish? Is it alright to ignore certain responsibilities, because you finally have your priorities straight? These questions and more are certainly worthy of extensive examination.

Personally, I suppose blogging will be an outlet. It'll allow me to finally free myself of some pervasive negativity, and maybe even relieve enough of my recently adopted neurotic behavior to once again function in the world at large. It will certainly serve to garner awareness for cancer, and that's a primary goal in my life these days. Because, as much as my experience has pained me and set me back in my own life, the thought of anyone else undergoing the same level of suffering is very hard for me to think about. I find myself tearing up every time I begin to read the account of another cancer survivor. Awareness is important, because suffering is only alleviated when there is enough manpower present to alleviate it. It isn't magic -- it's math. And all the publicity in the world won't help unless enough of us decide to act. Action manifests itself in several ways, and that's part of the reason I've finally decided to blog about this.

My account is detailed in my book, "Cancer Kid." But that isn't enough. I have certain goals I've sworn to meet, without excuse, and I plan to meet them. Blogging was not originally one of those goals, but it's going to help in several ways. It will hopefully help the public at large be more informed about the goings-on of cancer survivors. It will help me create a platform for myself and publicize my work, which will in turn increase awareness and further the fight. It will allow me the resources to fund the foundation I'd like to build. And, perhaps most importantly of all, it will free me from the fear I've buried so deep in my subconscious, and allow me to remember the important things in life.